How do you define hope?
I define hope as the desire to have something positive happen. Without hope, it would be hard for me to have a positive outlook on Taylor’s future with CF.
How do you find hope?
Early on, I found hope by getting involved in CF related fundraisers and meeting other parents of children with CF. Today, I have many friends with CF children and can reach out to them when needed. I also have an amazing family and supportive friends who don’t have children with CF, but are there for me at any time.
How do you carry on - move forward - during difficult times?
Taylor has an amazing amount of strength. I watch her handle difficult situations and it helps me carry on. I also have the amazing support of my friends and family.
My darkest moment was getting the diagnosis. I felt like my heart had been ripped out of my chest and couldn't believe this was happening to us. I was able to overcome it by doing everything I could to learn about the disease, staying consistent with her treatments, having faith in her doctors and praying A LOT! Our friends and family were also a tremendous help during this difficult time.
What advice do you have for others regarding hope?
Have faith in the situation. Reach out to others, whether it is friends, family or both. Don't try to overcome difficult situations alone...it is always better with the help of others. And, most of all, don't give up...hope for the best :-)
As mentioned earlier in the week, Keri and Taylor are dear friends of mine. I have been fortunate to witness their strength and hope despite the daily difficult challenges cystic fibrosis presents. I hope to follow their example of making the most of life - come what may.
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